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This is the clear, practical guide you’ve been waiting for.
Hypermobile? Confused? Exhausted by conflicting advice?
I wrote this book because I needed it — and it didn't exist.
I'm an osteopath who specialises in hypermobility, and I've lived with hEDS my entire life. I know this condition from both sides: as the clinician in the room, and as the patient who needed answers.
So I wrote this book: one place to find everything I wish everyone knew about hypermobility, hEDS, and HSD. Just enough history and physiology to make everything else make sense, why diagnosis is so complicated, what the healthcare system gets wrong, and answers to 75 of the most common questions I hear in clinic — from "what is hypermobility" to "why does my shoulder feel homeless."
Because finding answers shouldn't be this hard.
This book is for you if:
You are hypermobile (or suspect you might be)
You have a rare EDS subtype (this book focuses on hEDS and HSD)
You want to go from confused to confident about what's going on in your body
You're a clinician looking for a clinical textbook (this book was written for patients)
You're supporting someone with hEDS or HSD and want to understand what they're going through
It's probably not for you if...
you want Something impersonal (my voice and lived experience are woven throughout)
Emily Massey - Model and disability advocate
"Read this. Then give it to everyone who still doesn't get it."
Clarity on what hypermobility, hEDS, and HSD actually are
The language and confidence to advocate for yourself during appointments
Honest answers to the questions you've always wondered about
A framework for understanding your own symptoms
A starting point for conversations with your healthcare team
Proof that your symptoms are real, valid, and worth taking seriously
This book gives you:
Get your copy
Libraries, clinics, and independent bookshops can order through Ingram Spark.
12 years
1 in 500
75
261
"I love when I can get clear accessible information that is backed by research. Such useful information delivered with such care. Every hypermobile person needs this in their toolkit."
“A straight-talking guide for patients who are left to fend for themselves. So grateful for this book!”
Hannah Small – chronic illness advocate
"Finally, a hypermobility resource I can recommend to every single one of my clients."
Thaisa Uchoas – Specialist massage therapist
Farzana Jaffer Jeraj - Author and Motivational Speaker
What readers are saying
About the author
Alexandra Orfanides M. Ost. BA is a hypermobility specialist osteopath who works with patients worldwide. She is the founder of Hypermobility HQ® and host of the Help! I'm Hypermobile podcast, where she shares accessible information on hypermobility, hEDS, and HSD.
To contact Alex for book-related enquiries please send an email to alexandraorfanideslimited@gmail.com
Get your copy
Libraries, clinics, and independent bookshops can order through Ingram Spark.
A Look Inside The Book
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No. This book is an educational guide written by a registered osteopath. If you have concerns about your health, please speak to your medical doctor.
Frequently Asked Questions
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
This book focuses specifically on hEDS and HSD. If you have a rare EDS subtype, some content may still be relevant to you, but the book is not written with those subtypes as its primary focus.
Can I book an appointment with you?
Yes. I see patients in person at my clinic in London and offer online consultations for those outside of London. You can find out more and book at hypermobilityhq.com.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
Yes. The book is available as a paperback and ebook. An audiobook is also in production with release scheduled for summer 2026.
Yes. A second edition is planned for approximately two years after the new guidelines are published. This gap allows time for researchers and clinicians to assess the guidelines in real-world settings before any update is written.
That being said, the vast majority of content in this book will still be relevant even after the 2026 guidelines are published as they discuss hEDS, HSD, and hypermobility in a general sense.
Can I book an appointment with you?
Yes. I see patients in person at my clinic in London and offer online consultations for those outside of London. You can find out more and book at hypermobilityhq.com.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
In the UK, osteopathy is a regulated healthcare profession. UK registered osteopaths complete a four to five year Masters level degree and are required by law to register with the General Osteopathic Council (GOsC) before practising. This is different from the US, where the title "osteopath" refers to a fully licensed medical doctor (DO). In the UK, osteopaths are allied healthcare professionals who specialise in diagnosing and treating musculoskeletal conditions. You can verify any UK osteopath's registration on the GOsC website.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
Not at all. This book is written to be understood by anyone, regardless of their medical background. Clinical concepts are explained clearly and in plain English throughout.
Yes. I see patients in person at my clinic in London and offer online consultations for those outside of London. You can find out more and book at hypermobilityhq.com.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
Absolutely. Whether you are newly diagnosed, mid-diagnosis, or still searching for answers, this book is written for you. A formal diagnosis is not a prerequisite for finding it useful.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
Yes. A second edition is planned for approximately two years after the new guidelines are published. This gap allows time for researchers and clinicians to assess the guidelines in real-world settings before any update is written.
That being said, the vast majority of content in this book will still be relevant even after the 2026 guidelines are published as it discusses hEDS, HSD, and hypermobility in a general sense.
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Can I book an appointment with you?
Frequently Asked Questions
Is this book medical advice?
Is this suitable for people with rare EDS subtypes?
Is this available as an ebook or audiobook?
What is a UK registered osteopath?
Do I need any prior medical knowledge?
Is this relevant if I don't have a diagnosis yet?
Will this book be updated once the 2026 hEDS and HSD guidelines are published?
Yes. I see patients in person at my clinic in London and offer online consultations for those outside of London. You can find out more and book an appointment at hypermobilityhq.com.
Can I book an appointment with you?
Written with the honesty of someone who’s been there (and the science to back it up), this is the manual your connective tissue forgot to include.